It is with great joy that we announce our first program to support families in clinical trials. Here are the details.
Rest Easy: A program to help make the first step easier. Beginning Feb. 20, 2014 the Rettland Foundation will pay for 2 nights hotel stay for the screening visit of the NNZ-2566 clinical trial at any of the three trial sites. This program will be in effect until Phase 2 of the trial is completed. To make arrangements email colleen@rettland.org To learn more about this clinical trial you can follow this link.
We would love to expand this to cover other clinical trials and a wider variety of support but we need your help. Consider donating today or sharing our story.
***UPDATE*** as of March 12, 2014 we will be providing one night in hotel for the final visit of the NNZ-2566 trial for anyone who has yet to complete their participation in the study.
My granddaughter, Lauren Strouhal, has just been diagnosed with Rett Sundrome. Very hard time for our family. Would like to know where to donate, address, etc. Want to know more about clinical trials, etc.
Charlene Jones
Charlene, you can email me colleen@rettland.org and I can get some information for you. I am sorry to say welcome to the club but at the same time, we are a pretty great group. I would love to help connect you with some people that could help while this is all so fresh. If you would like to donate we have a place on our site http://rettland.org/donate/ and our mailing address is PO Box 7362 Santa Cruz, CA 95061
Thank you Colleen for helping our Family and other Rett Families!!! This is a wonderful program!!
Thank YOU Ann! Such an honor to help your family with the first steps.
Tell me more about it please. How old she has to be ???
There are several trials. The one that we are currently helping with costs is for girls 16-45. If you would like more information you can go to http://clinicaltrials.gov/ct2/show/NCT01703533?term=rett+syndrome&rank=8
Love the name of the program, very clever! Looking forward to helping other families get to this trial. Thanks so much for giving all of us an avenue to help each other.
yay! love this picture it looks like Claire is jumping too!